INHA Embedded Researcher Roles

The following are a list of the studies where the INHA has held the role of Embedded Patient Researcher :-

• HRB Mother and Baby Clinical Trial Network
• Primary Eyecare Steering Group
• European Medicines Agency
• Cos Star- Core Outcome Set Standard For Reporting (University of Liverpool)
• SHIPS Study- Study to Improve Health in Very Preterm Infants in Europe
• NEOView – Cork University Maternity Hospital
• Bright Horizons – The Coombe Hospital
• Core Outcome Set For Studies in Prevention of Preterm Birth
• Kiobrina Trial – Sobi
• iHope Study – Developing a Core Outcome Set For Pre-Eclampsia
• Supporting the Peer Supporter Study – UK
• Healthy Pregnancy In Ireland – Rotunda Hospital
• Investigating Pre-Eclampsia Markers To Reduce Preterm Deliveries – Rotunda Hospital
• Unicorn Study investigating therapies to improve neurodevelopmental outcomes post brain injury at/prior to birth – The Coombe Hospital & Our Lady’s Children’s Hospital Crumlin
• Hi-Lo Study to investigate therapies to prevent thromboembolism in pregnancy – Rotunda Hospital
• Improving Treatment Decisions Through Network Meta-Analysis Using Individual Participant Data from Randomised and Non-Randomised Studies – USA
• Tocolysis To Improve Neonatal Outcomes – Australia
• The Effectiveness and Safety of Progesterones to Prevent Preterm Birth : An Individual Participant Data Meta-Analysis – Australia
• Ireland Study- RCT of low aspirin first trimester for optimising pregnancy outcome in pregestational diabetes.
• Setting Preterm Birth Research Priorities – James Lind Alliance
• Parental Information on Therapeutic Hypothermia Following Neonatal Encephalopathy – National Maternity Hospital
• SafeBoosC Trial – RCT on cerebral near infrared spectroscopy and a treatment guideline v’s treatment as usual for extremely preterm infants during the first 3 days of life – Cork University Maternity Hospital
• POPART Study – comparing administering surfactant at the back of the throat in addition to CPAP to CPAP alone for the treatment of Respiratory Distress Syndrome
• Strider Study – RCT of Sildenifil therapy in early onset intra-uterine growth restriction
• Neonatal and Children’s Brain Consortium Ireland – 7 Phd Student Programme focusing on Neonatal Encephalopathy. INHA were PhD supervisors to all 7 students.
• Core Outcome Set For Growth Restriction
• Parrot Study – Placental growth factor assessment of women with suspected pre-eclampsia to reduce maternal morbidity
• COSNEON – Core Outcome Set for Intervention Studies For Babies Born Growth Restricted
• COSTIL – Core Outcome Set in Stilbirth
• ELICIT COS – Core Outcome Set to evaluate the impact of interventions to improve decisions about trial participation
• EPITOME – Exploring methods of participant inclusion in Delphi Studies
• Firefly – The Coombe Hospital – Follow-up of inflammatory responses and multi-organ outcomes following neonatal brain injury
• Standard Set for Preterm and Hospitalised Infants – ICHOM
• Co-Opt Study – Study of pregnancy treatments to prevent complications and preterm birth
• Serene- Study to prevent neonatal seizures
• National Neonatal Therapeutic Hypothermia Register Development
• Continuum Study – COVID 19 Neonatal to Adult, understanding the immune responses
• COMET POPPIE Working Group – People and Patient Participation, Involvement and Engagement
• RECAP – Research on European Adults Born Preterm
• ETAPA – Early targeted paracetamol for PDA in extremely preterm infants – The Coombe Hospital
• NUTRICEM – Europe
• PROMETEUS Project developing monitoring devices to protect brain development – Europe
• PEOPLE Study – Antibiotic resistant microbes in the ICU
• BE SAFE- Safe care through health infographics
• Chameleons Project – Developing a PhD Programme for a Finnish University
• Connect4Children Advisory Board – Pediatric Development For Asthma
• In4Kids Network
• Whole Body Vibration Emissions In the NICU
• Infant Feeding In Emergencies
• Current Practice Of Developmental Care In the NICU
• Cross Sectional Case Control Analysis Using Advanced Echocardiograpic Functional Parameters To Compare Young Adults Born Preterm To Those Born Term – Our Lady’s Children’s Hospital Crumlin
• National Perinatal Epidemiological Centre – Clinical Audit on Very Low Birth Weight Infants in Ireland
• Prenat Hub – Europe
• PANTHER – Promoting Attachment in Neonatal Encephalopathy and Therapeutic Hypothermia
• Pro Perihealth – Promoting maternal mental health in Ireland
• Developing and validation of a risk stratification tool for assessment of maternal and neonatal morbidity and mortality using data from the National Maternal and Newborn Clinical Management System
• The safety, short term and long term outcomes associated with Therapeutic Hypothermia in Mild HIE
• Analysing the therapeutic potential of anti-inflammatory drugs on brain development, neuronal activity and long term outcomes after birth asphyxia
• How Mothers Milk Trains Infant Immunity – Dublin City University
• STARFISH – sustained inflammation in preterm infants and multi-organ dysfunction correlates with long-term outcomes
• Increased gut permeability; the missing link between maternal stress during pregnancy and neurodevelopment impairment.
• Reducing neonatal /maternal mortality by rapid detection of sepsis in resource limited environments – Maynooth University
• Platypus – preterm perinatal inflammation and immune function in NEC and sepsis
• PROTECT Study – study of pentoxifylline for NEC or Late Onset Sepsis in preterm infants
• Nectar Neonatal Encephalopathy: optimising Communication with families on Research
• Family Sleeps
• AI-Preemie – University College Dublin
• Neuroplast BV Stem Cell CT multi-center, double-blind, randomized, placebo-controlled, delayed-start phase II/III study to assess the efficacy and safety of Neuro-Cells in (sub)acute spinal cord injury patients
• Together – AMR- teamwork for goals orientated enhancement of technology and healthcare policy through evidence based research in antimicrobial resistance
• Camellia – Cerebral Palsy & Multi-organ Lifelong Management to Improve Outcomes
• Hear My Voice – A Patient and Staff Stories Project regarding Antimicrobial Resistance (AMR) and Infection Prevention and Control (IPC), and Sepsis, knowledge, practices, experiences, and perceptions
• ALPACAS – Altering Persistent Inflammation And multi-organ outcomes in children at high risk of Cerebral Palsy
• Disability in Marginalised Groups & Communities
• A deeper understanding of ‘mothers’, milk, and microbes: supporting optimal feeding practices and health outcomes
• PrePOP Study- preterm birth prevention with oral probiotics – National Maternity Hospital
• Defining Neonatal Sepsis Consortium – University College Galway
• Assessing Seasonal Patterns in Preterm Births and Stillbirths- a multinational analysis of preterm births and still births
• Developing a Model For PPI in Maternal and Neonatal Trials – Trinity College Dublin
• Quality and Safety Measures in Maternity & Neonatal Services in Ireland – University College Dublin
• Surgical Handover in Trials Core Outcome Set Development
• Active Ireland – University College Dublin
• PADDINGTON2 Study – Improving Medicines Information For Families At Discharge From The NICU – RCSI and Rotunda Hospital